Notre groupe organise plus de 3 000 séries de conférences Événements chaque année aux États-Unis, en Europe et en Europe. Asie avec le soutien de 1 000 autres Sociétés scientifiques et publie plus de 700 Open Access Revues qui contiennent plus de 50 000 personnalités éminentes, des scientifiques réputés en tant que membres du comité de rédaction.

Les revues en libre accès gagnent plus de lecteurs et de citations
700 revues et 15 000 000 de lecteurs Chaque revue attire plus de 25 000 lecteurs

Indexé dans
  • Index Copernic
  • Google Scholar
  • Ouvrir la porte J
  • JournalSeek de génamique
  • Infrastructure nationale du savoir de Chine (CNKI)
  • Bibliothèque de revues électroniques
  • Recherche de référence
  • Université Hamdard
  • EBSCO AZ
  • OCLC-WorldCat
  • Bibliothèque virtuelle de biologie (vifabio)
  • Publons
  • Fondation genevoise pour l'enseignement et la recherche médicale
  • Euro Pub
  • ICMJE
Partager cette page

Abstrait

Understanding the Needs and Perspectives of Patients with Incurable Pulmonary Disease at the End of Life and their Relatives: Protocol of a Qualitative Longitudinal Study

Gabriella Marx, Henrikje Stanze, Friedemann Nauck and Nils Schneider

Background: Although patients with COPD sometimes have lesser physical, social, and emotional functioning than those with lung cancer, they rarely receive specialised palliative care support at the end of life. To date, specialised palliative care is not common for patients with non-malignant disease but should be adapted according to the patients’ special health-care-related needs with regard to specific illness trajectories. This longitudinal study aims to get a deep insight into the needs and perspectives of patients suffering from progressive lung diseases, i.e. lung cancer and COPD, over a period of time.

Methods: The design of this study is divided into three phases: (1) Qualitative prospective longitudinal study conducting four semi-structured repetitive interviews with a total of 40 patients over a period of 12 month. Data will be analysed content related as well as interpretative using Grounded Theory (2) Four group discussions with bereaved people whose relatives died from COPD or lung cancer. Data will be analysed using documentary method. (3) A oneday multidisciplinary workshop with representatives of different health related fields to derive implications for daily practice.

Discussion: By integrating different diseases, the study contributes to shift the focus of palliative care to patients with non-oncologic diseases. As this is the first German study on this issue, results will enrich the current international discussion with a German perspective.

Avertissement: Ce résumé a été traduit à l'aide d'outils d'intelligence artificielle et n'a pas encore été examiné ni vérifié.