Soins palliatifs et médecine

Abstrait

Sclerosis Lateral Amyotrophic, A Vision From Palliative Care

Emilia Castro Rodríguez, Marta Sierra García, Mar Requena Vargas and Verónica Gómez Martínez

This article is a case study of symptomatic management of Amyotrophic Lateral Sclerosis (ALS) in Spain by a home care and support teams program in the Public Health Service. The goals during the evolution of this disease were thoroughly treated by careers, as well as on the institutional and systemic framework. Family involvement and intervention were essential to define the quality of the care. Abilities and attitudes for caring were extraordinary trained to walk with this patient during the last years of his life. Palliative care was guided to understand his suffering and all his needs and to help the caregivers. The purpose of this article is to identify some factors that might contribute to his autonomy and safety.