Journal des nouvelles physiothérapies

Abstrait

A Novel Exercise Protocol for Individuals with Ehlers Danlos Syndrome: A Case Report

Chiho Fukusaki, Kannika Leetawesup, Noriaki Kato, Yuma Kadokura, Kimitaka Nakazawa, Hideo Yano and Naokata Ishii

Ehlers-Danlos Syndromes (EDS) are a group of heritable connective tissue disorders first described by Hippocrates in 400 BC. EDS has undergone multiple changes in classification and diagnostic criteria since it’s initial observation. Once thought to be extremely rare EDS has seen a significant increase in prevalence corresponding with these changes and estimates have reached one in 2500-5000 depending on the subtype considered. Physical therapy is considered an essential therapeutic modality for a number of the different subtypes of EDS. Unfortunately the outcomes have not always been positive and patients have reported increased pain and dysfunction following physical therapy intervention. This case report presents the positive outcomes of a patient who has completed a novel exercise protocol designed specifically for individuals living with EDS.